Outreach (formerly Freeman-Sheldon Parent Support Group)

Last Modified: 19 May 2019

FSRG has a number of resources available to families, patients, and others affected by Freeman-Sheldon (FSS) or Sheldon-Hall (SHS) syndromes.
FSRG strives to provide responsive and relevant services to better help patients and families.

  • There are general information resources available authored by FSRG, including a brief description of FSS and a Question and Answer document. 
  • There are also scientific resources available, including a full bibliography available on this website. Most articles in the bibliography can be emailed on request.
  • FSRG helps individuals and families impacted by FSS network and share their experiences in many ways, not just online.