Last Modified: 24 Dec 2013


Hello and welcome to the Freeman-Sheldon Research Group (FSRG)! Here you will find information about FSRG's mission and organisation, services, research, and news. Information resources on Freeman-Sheldon syndrome and related conditions will be updated and increased periodically, so please check back often. FSRG is the world leader in FSS research, peer-level support, and awareness.

IF YOU NEED HELP, please Contact Us HERE! We will respond to appropriate communications in 24-48 hours.

Three founders: Chamberlain, McCormick, and Poling 
(Credit: J Conley)

Our Mission

The mission of the Freeman-Sheldon Research Group, Inc. (FSRG) is to provide a Judeo-Christian faith-based setting (1) to improve the quality of life of individuals with Freeman-Sheldon (FSS), Sheldon-Hall syndromes (SHS), and related entities by furthering research, clinical care, advocacy, and education for families, professionals, and the wider lay community; (2) for education and training in the health sciences; and (3) to facilitate fellowship and professional exchange concerning the above.

The FSRG's motto is, 'to glorify God, investigate, help patients, and teach,' focusing on Freeman-Sheldon syndrome and related entities.

Our Goals

FSRG’s focus is on physiology, the normal function of the body; the goal is to make the body work and the person well, through patient-driven, patient-centred research and services. FSRG is happy to receive input on concerns and problems that should be considered in research, and FSRG is eager to help individuals and families in new ways.


The following disclaimer applies to all sites and sub-domains. All information appearing on this site and all sub-sites is written by the administrator, MI Poling, unless otherwise noted. (Poling's academic and research qualifications can be found on Selected Faculty and Fellow Profiles page.) All information is internally peer-reviewed. The vast majority of information contained on this site and links to other sites is appropriate for professionals, but there is some content for the general public. It should not be used to replace consultation with a physician or surgeon. 

Freeman-Sheldon Research Group, Inc. (FSRG) operations, including this site, are supported chiefly by donations. This site neither permits ads nor collects personal or non-personal information. The site does not host, receive funding from advertising, or from the display of commercial content. Any correspondence with the FSRG is governed by strict professional confidentiality. FSRG's specific privacy practices can be found here. For any question, please click here; the information sent to FSRG on this online form is initially received by the administrator and is forwarded to the appropriate Department, as required. It is not shared outside of FSRG in any event.

In addition to information on this site, there are external links to relevant internet resources and tools. While outside links contained on this site are reviewed for content, the administrator does not control or influence their content and cannot be held responsible for them.

Thank you,

MI Poling, admin.
Buckhannon, West Virginia,
United States

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