Freeman-Sheldon Research Group, Inc.

Last Modified: 30 March 2012

WELCOME! FSPSG.ORG IS NOW FSRGROUP.ORG.

Hello and welcome to the Freeman-Sheldon Research Group (FSRG)! Here you will find information about FSRG's mission and organisation, services, research, and news. Information resources on Freeman-Sheldon syndrome and related conditions will be updated and increased periodically, so please check back often. FSRG is the world leader in FSS research, peer-level support, and awareness.

Three founders: Chamberlain, McCormick, and Poling

(Credit: J Conley)

Our Mission

The mission of the Freeman-Sheldon Research Group, Inc. (FSRG) is to provide a Judeo-Christian faith-based setting (1) to improve the quality of life of individuals with Freeman-Sheldon (FSS), Sheldon-Hall syndromes (SHS), and related entities by furthering research, clinical care, advocacy, and education for families, professionals, and the wider lay community; (2) for education and training in the health sciences; and (3) to facilitate fellowship and professional exchange concerning the above.

The FSRG's motto is, 'to glorify God, investigate, help patients, and teach,' focusing on Freeman-Sheldon syndrome and related entities.

Our Goals

FSRG’s focus is on physiology, the normal function of the body; the goal is to make the body work and the person well, through patient-driven, patient-centred research and services. FSRG is happy to receive input on concerns and problems that should be considered in research, and FSRG is eager to help individuals and families in new ways.

Disclaimer

The following disclaimer applies to all sites and sub-domains. All information appearing on this site and all sub-sites is written by the administrator, MI Poling, unless otherwise noted. (Poling's academic and research qualifications can be found on Selected Investigator Profiles page.) All information is internally peer-reviewed. The vast majority of information contained on this site and links to other sites is appropriate for professionals, but there is some content for the general public. It should not be used to replace consultation with a physician or surgeon.

Freeman-Sheldon Research Group, Inc. (FSRG) operations, including this site, are supported chiefly by donations. This site neither permits ads nor collects personal or non-personal information. The site does not host, receive funding from advertising, or from the display of commercial content. Any correspondence with the FSRG is governed by strict professional confidentiality. FSRG's specific privacy practices can be found here. For any question, please click here; the information sent to FSRG on this online form is initially received by the administrator and is forwarded to the appropriate Department, as required. It is not shared outside of FSRG in any event.

In addition to information on this site, there are external links to relevant internet resources and tools. While outside links contained on this site are reviewed for content, the administrator does not control or influence their content and cannot be held responsible for them.

Thank you,

MI Poling, admin.

Buckhannon, West Virginia,

United States

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Recent Announcements

Obituary: Shirley E. Flynn, mother of Rev. Mark W. Flynn, FSRG Chief Chaplain and Ethics Officer Shirley Ellen Flynn of South Charleston died March 28 at Hubbard Hospice House in Charleston. Mrs. Flynn was the mother of Freeman-Sheldon Research Group, Inc. Chief Chaplain and Ethics ...
Posted 29 Mar 2012 21:21 by MI Poling
FSRG Secretary Announces Resumption of Limited-Operations FSRG Secretary, MI Poling, announced Friday that there had been some 'very serious' health problems affecting the families of FSRG faculty, staff, and students, but Poling urged that FSRG would ...
Posted 3 Dec 2011 04:04 by MI Poling
FSRG Now Listed by Eight Organisations, Syndicated to Others FSRG announced recently that eight organisation had primary listings and syndicated information from one organisation had reached many more organisations. The organisations with primary listings are as follows: National Organization ...
Posted 3 Dec 2011 04:03 by MI Poling
FSRG Joins 'Social Networking', Launches New Enterprise-Level Productivity and Collaboration Tools FSRG Secretary, MI Poling, announced recently that FSRG had begun a new visibility initiative to designed to increase FSRG's web presence and spark interest from consumers and professionals. As ...
Posted 23 Jun 2011 20:12 by MI Poling
Discussion Forum 'Lost' Due to Server, Account Failure Early Saturday, 18 June 2011, FSRG techs noticed an 'account suspended' screen and a failure to redirect from fspsg.org to fsrgroup.org. The account was unable to be accessed ...
Posted 18 Jun 2011 21:43 by MI Poling

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